This theme, the preservation of identity, is well brought out by Donna Cohen and Carl Eisdorfer in their fine book The Loss of Self, which is based on painstaking studies of a number of people with Alzheimerās. The title of their book is perhaps misleading, for it is not loss (at least until very late) but surprising preservations and transformations that we see in Alzheimerās, and this, indeed, is what Cohen and Eisdorfer show.
Related Quotes
Thomas DeBaggio, a writer and horticulturist, was even able to publish two insightful memoirs about his own early-onset Alzheimerās before the disease killed him at the age of sixty-nine. But most patients are frightened or mortified by the knowledge of what is befalling them. Some continue to be severely terrified as they lose their intellectual competences and bearings and find themselves in a world increasingly fragmented and chaotic. But the majority, I think, become calmer with time as they perhaps start to lose the sense of what they have lost and find themselves shifted into a simpler, unreflective world.
Kurt Goldstein, studying brain-damaged soldiers during World War I, was moved from his original, deficit-based point of view to a more holistic, organismal one. There were never, he believed, just deficits or releases; there were always reorganizations, and these he saw as strategies (albeit unconscious and almost automatic) by which the brain-damaged organism sought to survive, although perhaps in a more rigid and impoverished way.
All of which brings us to one of the most important points of this entire book: the difference between finding ātheā hedgehog and finding āaā hedgehog. If we hold to the idea that each of us has only one hedgehog and much of life depends on whether we find it, then this would be a very depressing study. But if we embrace the view that each of us has many possibilities to potentially discoverā that the constellation of encodings within each of us is vast and largely undiscoveredā then the challenge changes dramatically from the low odds of finding that one elusive unicorn hedgehog to finding just one out of many possibilities.
Our society has an inherent challenge: Many of its settings still have features that reflect our identity-stratified history and organization. Our schools, workplaces, churches, classrooms, civic organizations, and boardrooms have features that can make it harder for some identities to trust that they are a part of the āweā in the setting. Identity-blindness implies that, along with identity itself, these features donāt matter muchā they can, or should, be ignored. But they do matterā to all of us. Think of being the āonly oneā or āone of only a fewā in any important settingā as my hands reminded me, for example: one of only a few whites in a Black History seminar, one of only a few Blacks in a symphony orchestra, or one of only a few women in an advanced math course on Riemann surfaces. But thereās good news: as the Stephens experiment and the 3M company show, when these features are addressed, improvements can happen, sometimes without much effort or cost.
After years of living in America, I still feel a momentary elation whenever I see advertisements for weight-loss programs, teeth-whitening strips, hair-loss treatments, or plastic surgery with the contrasting effects shown under before and after. The certainty in that pronouncementāfor each unfortunate or inconvenient situation, there is a solution to make it no longer beāboth attracts and perplexes me. Life can be reset, it seems to say; time can be separated. But that logic appears to me as unlikely as traveling to another place to become a different person. Altered sceneries are at best distractions, or else new settings for old habits. What one carries from one point to another, geographically or temporally, is oneās self. Even the most inconsistent person is consistently himself.